The Invisible

Dedicated to Jeannette and Fibro friends

I am your daughter, your child, your parent, your aunt, your uncle, your friend, your neighbor, I am female, I am male but you don’t see me you shun me you are ashamed of me. You busy yourself with dishes, makeup, shaving, business, homework the phone or whatever just to avoid me so you don’t have to interact with me you may have to acknowledge me then what? You might have to support me? Acknowledge my disease?

I am among the lucky for my family supports me, they do acknowledge my disease; Fibromyalgia. They acknowledge me, they see me but so many do not see their loved ones and are ashamed of them. It is hard to believe with so many websites and doctors today acknowledging the disease. However, it is true many think their love ones are faking or crazy. They don’t believe their pain, their illness, their forgetfulness but I’m telling you it is real. I have had this awful thing since 1983 and it is a monster it robs you of who you once were taking every thing it can and giving you no choice. It is relentless. No two people are the same exactly in diagnoses or treatment. Making it difficult for doctors and patients. It hit’s the nerve endings and muscle ten dents around the joints, it effects the cognitive thinking as well causing what is called brain fog, stress makes it worse, cold makes it worse, other illness makes it worse in other words anything makes it worse. It’s crazy stuff people. I wouldn’t wish it on anyone. There is no cure at this time either but they are working on it. They have made progress in treatments. It won’t kill us but it takes our lives as we once knew them but we make new lives and adjust our old ones we just need our loved ones to help and to understand we won’t be the same exactly. So love us as we are now. Please.